"There is no saving grace in being confined to an iron suit, cold and unforgiving. The pleasures of mental agility are much overstated, inevitably—as it now appears to me—by those not exclusively dependent upon them. Much the same can be said of well-meaning encouragements to find nonphysical compensations for physical inadequacy. That way lies futility. Loss is loss, and nothing is gained by calling it by a nicer name. My nights are intriguing; but I could do without them."
Please read this article if you have time: the author is afflicted with ALS- in the poetic words of the author, "In contrast to almost every other serious or deadly disease, one is thus left free to contemplate at leisure and in minimal discomfort the catastrophic progress of one's own deterioration."
via
Night - The New York Review of Books
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'Freshwater lakes' by kevindooley via Flickr
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thanks, Sprixi
promise panni I am saying, I feel like 'eye tied' and left in forest.
ReplyDeleteals is a disease that paralyses slowly from arms and legs on, and you feel no pain at all as it slowly progress to the neck and sometimes to the throat muscles themselves. This particular article was dictated by someone who couldnt even turn over in bed without help.
ReplyDeleteimagine lying sleepless, with some itch in the back, and you can't do anything about it. you can't even move, you just lie there like a log.